Communication is a Human Right

Readers of this blog know that Cheeks spells his communication. He does have some speech, but it’s unreliable; his purposeful interactions and access to education come from his use of a letter board. This has been the single most effective support we have found for his autism, and having it has improved the quality of life for our entire family, not just for him.

But, you may also have seen me mention that not everyone accepts the methodology of spelled communication that Cheeks uses. Some in the autism community insist that it’s not “real,” and that the things communicated using these methods are merely a result of influence on the part of the communication partner. That dismissal of Cheeks’ abilities is insulting. Stephen Hawking initially spelled to communicate, but the authenticity was never questioned. What’s the difference? The presumption of his intellect, that’s what.

My child is entitled to, and capablScreen Shot 2018-07-17 at 5.18.39 PMe of, the same interaction and education that yours is. But he is not provided with it the way that yours is — based purely on an outdated, pejorative assumption that he doesn’t have the competence.

We’ve (mostly) adapted to that reality by homeschooling, and by advocating for and with Cheeks whenever we can. He is receiving an education, participating in his own health care decisions, and gaining a sense of agency for himself at an age-appropriate level.

But all of that is at risk of taking a huge step backward.

Recently, the American Speech-Language-Hearing Association (ASHA) issued two proposed position statements about spelled communication which expressly reject its legitimacy, and state, “…information obtained through the use of [these methods] should not be considered as the voice of the person with a disability.”

ASHA is a credentialing and standard-setting organization. If these position statements are adopted, what little access to letter boards currently in place will be removed. Acquiring an education, or even gathering research about best practices, will become non-existent. Thousands of voices will be silenced.

That is not acceptable.

Read more here:  Quick Facts About Communication Choice

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